Welcome to Cindy's Personal Page!
Alf & Patty Todd
Dave and Sandy Friesen
David & Darlene Mollard
Hans and Hedwig Kos
Lisa and Mike
Mom & Dad Schuurman
Mr. Walter Eric Berndt
Mrs. Susan Porter Diane Porter
Ron and Debbie Raber
Roxanne & Sandy Stedman
Sara & Travis Hansen
The Scott Family
My dad’s name is Alf (this is a picture of him and I, taken Father's Day weekend, 2013).
My mom and Dad have been married for 41 years! He is the father of 3 (myself and 2 brothers – Aaron and Adam), Papa to 4, brother, uncle, son and friend to many!
His working years were spent at Island Farms where he was the “milk man”. To be a home delivery milk man required not only great people skills, but also a lot of energy! My dad got to know SO many people through his job. Wherever he went, he’d run into people he knew, someone he used to deliver to! (I was recently in Mexico and ran into some folks who knew my Dad. This kind of thing is not uncommon!)
My dad has always been very active in his church and strong in his faith. He is a Christian, and has learned over the years how to lead by example. He loves unconditionally, isn’t too proud to ask for forgiveness and lives his life “un-hypocritically “
Dad has always been very fit, active and athletic. He worked out with weights at the gym for years, coached (and pitched) for the church softball team, rode his bike to California (just for fun) 3 times, and was (still is) an amazing water-skier.
6 years ago my dad was diagnosed with Parkinson’s disease. At that time I didn’t really know much about the disease, or how it would affect him/us. Parkinson’s is just for old people isn’t it? It makes your hands shake. Isn’t that what Michael J. Fox has?
I saw the effects sooner than I was prepared for. He started to move slower, the odd stumble, more frequent afternoon naps. The hardest part for me was to see him loose his smile. Parkinson’s causes the facial muscles to relax into what usually looks like a grumpy frown. My happy, jokester Dad now appeared to always be sad.
Now, 6 years later, he shuffles.
He recently bought a cane. He talks, thinks and moves slow.
Watching him bend down to tie his shoe is torture. I notice it more in his mind now, his forgetfulness, his slow thought process.
He has always been a very emotional man, but now it seems that the tears are always right there, waiting...
He will never play softball with his grandkids. He doesn’t wrestle with them. Instead they find other ways to interact, like board games. They don’t know any differently. As Garet says “Papa has shuffled my whole life”.
The last few years, as summer approaches, I have a fear; a deep, somewhat selfish worry. It will be with me until September, when the boats are out of the lake and waterski season is over. My concern is how devastating it will be when Dad can no longer get up on his ski. You see, he loves to waterski and is so great at it! The last few years, it’s been a struggle to get up, but once he’s up – he can do it! He’s awesome. It’s like he is healthy and disease free when he skis! He is happy and feels a burst of confidence. He can rip it up like no one’s business!! Sometimes now though, it’ll take 3, 4, 5+ tries. Sometimes he has tears of frustration but he keeps trying. He has always gotten up eventually. But what will happen the first time that he just can’t?? When he can’t hold on any longer? When his arms can’t pull him up? When his legs are too weak?
I completely, with 100% of my being, dread this day.
I have a lot of qualities, traits and features that come from my Dad- some good, some not so good. Dry, cracky skin, my blue eyes, Raynaud’s, extreme stubbornness (I like to call it determination or tenacity!), the inability to bite my tongue, my metabolism (for which I am extremely grateful). He has turned me into a bike rider, and passed on his passion for waterskiing. I can only hope that a cure is found before he passes on his Parkinson’s to me too.
Slowly over the past 6 years my dad has lost the ability to do the things he loves. Yes, I am lucky to still have him, and of course there are diseases out there that are worse, that progress quicker, that take over their mind or their memory. I understand this. But the fact of the matter is that my dad has Parkinson’s disease and I wish he didn’t.
I can’t cure him myself, so I do what I can.
I can spread the word and try to educate you all on what an amazing job The Michael J. Fox Foundation for Parkinson’s Research is doing. I can work for your donations. I can collect empties, or host a BBQ. I can bake cookies to sell. I can ride my bike to California. I can run a marathon.
I'm at it again!! Working hard to raise money for Team Fox, who in turn are working hard to find a cure for this horrific disease. I will do the hard work of running the marathon, you just need to help by making a donation!
Five million people worldwide are living with Parkinson’s disease — a chronic, degenerative neurological disorder. In the United States, 60,000 new cases will be diagnosed this year alone. There is no known cure for Parkinson’s disease. But through your support of Team Fox, you can help change this.
Team Fox is The Michael J. Fox Foundation’s (MJFF) grassroots community fundraising program. Its members include thousands of people worldwide who generate funds and awareness for Parkinson’s disease research. All funds raised through Team Fox go directly to MJFF to advance its mission to accelerate the delivery of life-changing treatments, and ultimately a cure, to people with Parkinson’s disease.
The Michael J. Fox Foundation is honored by your support. Since 2001, the Foundation has maintained an uncompromising pace — strategically targeting our resources to achieve maximum impact on patients’ lives, funding work on over 100 therapeutic targets to the tune of more than $297 million to date. MJFF also understands that patients are the key to a cure and is actively engaged with the PD community. To help connect patients and their loved ones with the clinical trials that urgently need their participation, the Foundation created a Web tool, Fox Trial Finder (www.foxtrialfinder.org). Whether you have PD or not, you can play a critical role in moving research forward — create your profile now!
Now through December 31, 2012, all Team Fox members new to the program or those who raised more than last year will have their funds matched dollar-for-dollar, thanks to the $50-million Brin Wojcicki Challenge (www.michaeljfox.org/challenge).
Your timing to step up for Team Fox couldn’t be better. Be a part of the answer and help us speed a cure for Parkinson’s today!